Tuesday, June 1, 2010
Day after ER visit...
Well, today we are both exhausted! Jeffrey was able to stay home for a little while before going to work so he could do his meds, take his Cipro and rest a little. I am emotionally exhausted! Throughout the day I would spontaneously burst into tears...no idea why! Last time, in November, it was much worse and I was so scared Jeffrey would be stuck in the hospital forever...but this time it really startled us. I love Jeffrey's doctor and was so happy he called to make sure Jeff was doing okay! Wish I had a social worker/therapist to talk to...that might be something to add to my list. I feel like I have been complaining over the last two days...but as I have read with other CFer's there are good days, bad days, really horrid days and then days that are pretty excellent! Hopefully there are days to come that are really excellent, especially after the Cipro kicks in! :)
Monday, May 31, 2010
The beginning...
Hello! My name is Stephanie and my husband, Jeffrey, has Cystic Fibrosis. I started this blog on 5.31.10 to get some help, insight and make some friends who know someone, who is related to someone or who is married to someone with CF (and everyone else in between!) :) My husband has been relatively healthy all of his life, except for a few bumps in the road, but all in all he is doing very well! I am finding that reaching out to people and finding more who have CF, more people who know of someone with CF, etc, is helping me along my path with Jeffrey. Sometimes it's hard for him to tell me how he is feeling as he has experienced coughing, treatments, antibiotics, vest, etc his whole life. SO...getting started I would like to say this blog is to help me out on my journey as well as to reach out to others who know someone with CF to give me strength and strengthen others along the way! Jeffrey and I are Christians and believe that God is a very powerful and loving God who would not give us anything we can't handle! Jeffrey is the strongest man I know and I love him more and more every day! We just celebrated our one year wedding anniversary this Sunday 5.30.10 and have loved every moment together!
Last November Jeff ended up in the hospital after coughing up quite a bit of blood. His doctor, whom we LOVE, was on call and before the ER doctors would send us home with nothing but an antibiotic, looked at Jeff's xray and found that Jeff needed a bronchial pulminary embolism (no idea if I spelled that right :) )....so, we were admitted and 5 hours later he had the surgery. Now, I have to say, and should have from the beginning, that Jeffrey and I both come from AMAZING families!! His father is a pastor, his mother a shining example of a wonderful mom, my mother is so strong and supporting (I love you mommy) and my father is the best soccer player and daddy I know (ok, so I am 28 and still call him daddy). We both have 2 siblings each and they are extremely supportive of us. SO...with that being said, Jeffrey and I had so much support in the hospital that we were overwhelmed.
We went home 4 days later after many IV's and finally a PICC line (which had to be put in twice and was NOT the nicest thing my husband has gone through) we were able to go home and relax! He had 2 weeks of antibiotics then we celebrated his PICC line coming out! Jeffrey will turn 30 in November and last November was the FIRST time in the hospital! It was a true blessing that he had not been admitted before that!
Just this morning we had to rush to the ER due to more blood, but this time the doctors were certain it was just a touch of something and gave him some antibiotics. As a wife I am very concerned and wish we had someone to talk to, to help me see that it's okay when we go to the ER that we don't have to stay there and make sure his PCP feels he is safe to go. I guess I am just a nervous nelly, but I am very worried about him all the time. Jeffrey is so strong, no one believes me when I tell them he does have CF...but yes, he does :)
It's about time for me to close, but please post, write messages and anything you can do to encourage us through our next year of marriage would be great!! We have one friend, Gillian, who has CF and she is the toughest middle schooler I know!! (Gillian lives in Mass, we live in Maine and I can meet her, but Jeffrey can't due to B. Cepia.)
Thank you for listening and please post your thoughts, prayers, anything (appropriate)...we are very laid back and love making new friends!!
Last November Jeff ended up in the hospital after coughing up quite a bit of blood. His doctor, whom we LOVE, was on call and before the ER doctors would send us home with nothing but an antibiotic, looked at Jeff's xray and found that Jeff needed a bronchial pulminary embolism (no idea if I spelled that right :) )....so, we were admitted and 5 hours later he had the surgery. Now, I have to say, and should have from the beginning, that Jeffrey and I both come from AMAZING families!! His father is a pastor, his mother a shining example of a wonderful mom, my mother is so strong and supporting (I love you mommy) and my father is the best soccer player and daddy I know (ok, so I am 28 and still call him daddy). We both have 2 siblings each and they are extremely supportive of us. SO...with that being said, Jeffrey and I had so much support in the hospital that we were overwhelmed.
We went home 4 days later after many IV's and finally a PICC line (which had to be put in twice and was NOT the nicest thing my husband has gone through) we were able to go home and relax! He had 2 weeks of antibiotics then we celebrated his PICC line coming out! Jeffrey will turn 30 in November and last November was the FIRST time in the hospital! It was a true blessing that he had not been admitted before that!
Just this morning we had to rush to the ER due to more blood, but this time the doctors were certain it was just a touch of something and gave him some antibiotics. As a wife I am very concerned and wish we had someone to talk to, to help me see that it's okay when we go to the ER that we don't have to stay there and make sure his PCP feels he is safe to go. I guess I am just a nervous nelly, but I am very worried about him all the time. Jeffrey is so strong, no one believes me when I tell them he does have CF...but yes, he does :)
It's about time for me to close, but please post, write messages and anything you can do to encourage us through our next year of marriage would be great!! We have one friend, Gillian, who has CF and she is the toughest middle schooler I know!! (Gillian lives in Mass, we live in Maine and I can meet her, but Jeffrey can't due to B. Cepia.)
Thank you for listening and please post your thoughts, prayers, anything (appropriate)...we are very laid back and love making new friends!!
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